Unseen
The secret world of chronic illness
Jacinta Parsons
“Broadcaster Jacinta Parsons was in her twenties when she first began to feel unwell – the kind of unwell that didn’t go away. Doctors couldn’t explain why, and Jacinta wondered if it might be in her head. She could barely function, was frequently unable to eat or get out of bed for days, and gradually turned into a shadow of herself. Eventually she got a diagnosis: Crohn’s disease. But knowing this wouldn’t stop her life from spiralling into a big mess of doctors, hospitals and medical disasters.”
Wow. This is a heartbreaking and heartwarming account of one woman’s live destroying disease and how she got through and lives with her condition. I could hardly believe that doctors had gotten it so wrong, and the huge impact of a clinical trial gone wrong on the rest of her life. Remember that you don’t have an obligation to participate in something, but you do have an obligation to make the most of what you have. This is something the author realised over time, thankfully not too late.
Jacinta admits that Indigenous Peoples and people of colour or low socioeconomic standing struggle to advocate for themselves in the system. That’s fine. My problem arose in that she didn’t consider other countries where healthcare isn’t a basic human right at all. I think of the horror of the USA system, and I consider Australian healthcare to be brilliant in comparison!
Possibly TMI time, but I’ve always struggled with ‘period pain’. I generally think of myself as quite stoic and straight-forward, but it’s something I haven’t bothered to go to the GP about. I manage to somehow forget that it’s a problem! Jacinta highlights why this is a BAD idea, and also why it’s something that women do that undermines themselves – and gives the statistics to back it up.
I hope that the medical students that I help to train have compassion and curiosity to look deeper into chronic health problems, and the self-awareness that it’s ok if GPs are sick sometimes too. This is a book not just for ‘normal’ humans to understand chronic illness, it contains insights relevant to health professionals as well. I would recommend reading it in small doses – as an audiobook I found it almost overwhelming, yet compelling to listen to at the same time.
I have been ‘enjoying’ a number of non-fiction novels lately about the Holocaust. I say ‘enjoying’, but really they are quite sad reads due to the devastating loss of life as a result of Hitler’s anti-Semitic policies. I found myself horrified and yet not surprised at the level of brutality exhibited by the Nazi’s. It’s one thing to have a critical idea of World War II (as I’ve said before, my history knowledge is poor) and another to really experience it as these writers did.
I’d recommend this book to basically everyone, regardless of whether they have a family history of dementia or whether they’ve barely heard of the condition. It’s compassionate and sensible, and filled with ways to help people understand dementia rather than just judging someone by it.
Part of the struggle in this novel is that I wasn’t sure whose side I was on. Ok, it’s terrible that humans are losing part of their lives to monsters when they time travel. But also, how cool is that?? It could only be more awesome if they could take a regular human with them.
What if it’s Us?
Here’s to Us
I listened to this as a talking book after I was disappointed by the last two fiction audiobooks I tried. Unfortunately this one let me feeling a bit cheated. I expect and enjoy memiors that are filled with human nature and the feelings of their writer. This memior fails for me because it is filled with too much dry history and is quite repeditive. Someone who enjoys history will probably get more out of this book than me.
Hoang reports that she had problems completing this novel, just as her protagonist struggles to continue with her music. I’m so sorry, Helen, if I may be so familiar with you to use your first name. I didn’t find The Heart Principle to be as good as 
This was gripping! For a while, I wasn’t even sure which character was the one who had ended up dead. I was even vaguely hoping that it was a total stranger dead in there, but then I noticed the blurb, and that ruined it for me. So trust me, just pick up the book and read it, don’t read the blurb. I stayed up late and got told off – but I just needed to know what happened next!
I slogged through this one for you all – it was an almost 20 hours behemoth of a talking book, and I only got through it because I couldn’t be bothered finding a different audiobook to listen to while painting. It was that bad that I sometimes considered silence a better option. It was repetitive in parts, and it was obvious what the ending/outcome of Maya’s search would be.
This is a review of all five books in the initial series, written by a 12-year old reader who was promised a trip to the library if she wrote one! Who am I kidding, we would have gone anyway… I’ve had to reword slightly so that it isn’t filled with spoilers.